Coming Soon:
Juvenile Athritis: The Ultimate Teen Guide
By Kelly Rouba
A self-help guide for youth, Juvenile Arthritis: The Ultimate Teen Guide will also be useful to family members, friends, and caregivers of those suffering from the disease. Author Kelly Rouba has prepared a truly comprehensive resource without making it overwhelming in order to help those who have JA lead the best life possible. As someone diagnosed with a severe form of the disease at the age of two, Rouba is very familiar with how difficult—physically and emotionally—it can be to live with this chronic illness.
Readers get an overview of juvenile arthritis from the point of view of teenagers and their parents, and there are discussions related to diagnosis, symptoms of the disease, its history, and various related conditions. Treatment options are also so discussed, as well as tips on how to adapt to life with the disease including exercise, diet and therapy. A list of applicable Web sites and other helpful resources is included at the end of most chapters.
Kelly Rouba is an author, writer, and public relations professional who was diagnosed with juvenile rheumatoid arthritis at age two. She is also a member of the Arthritis National Research Foundation's Advisory Board.
If you are interested in receiving a copy of Kelly Rouba's forthcoming book for a full - length published review or would like to set up an interview with the author, please contact Lisa McAllister.
Thank you for your time,
Lisa
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Lisa McAllister
Publicity / Rowman & Littlefield Publishing Group
4501 Forbes Blvd., Suite 200
Lanham, MD 20706
www.rlpgbooks.com
p: 301.459.3366 X5619
f: 301.429.5747
Make Your New Year’s Resolution to Learn More About TBI!
It’s Easy as 1-2-3:
1. Register for the February 9-10th First Annual Conference, Moving the TBI Agenda: Change, Challenges & Collaboration, sponsored by the California Department of Mental Health and the Traumatic Brain Injury Advisory Board by going to www.regonline.com/TBIConference. Registration deadline is January 30. Special rates for individuals with TBI, caregivers and students; special rates for one day only; and limited financial assistance are available.
2. Make your hotel reservations with the Holiday Inn Capitol Plaza, Sacramento. Request TBI Conference to get the Conference rate. Phone: 1-800-HOLIDAY. The cut off date for the block of rooms is January 17, 2009.
3. Attend the conference and learn from the experts:
Tamara Bushnik, Ph.D., Project Director for the Traumatic Brain Injury Model System Santa Clara Valley Medical Center
Jeffrey S.G. Englander, M.D., Clinical Director for the Traumatic Brain Injury Model System at Santa Clara Valley Medical Center
Geoffrey T. Manley, M.D., Ph.D., Associate Professor in Residence at the Department of Neurological Surgery, School of Medicine, San Francisco General Hospital
Ted Puntillo, Deputy Secretary, Department of Veteran Affairs
Debra Rose, Ph.D., Professor and Co-Director for the Center for Successful Aging and Fall Prevention Center of Excellence at California State University
Ronald M. Ruff, Ph.D., Clinical Neuropsychologist & Rehabilitation Psychologist, San Francisco Clinical Neurosciences and University of California San Francisco
And many more ….
For further information see the attached brochure or get a copy of the brochure at the California Department of Mental Health website at:
http://www.dmh.ca.gov/Services_and_Programs/Adults/docs/TBI_docs/ConfBrochure_09Jan8.pdfor contact Yvonne Shifflette at (916) 654-2147 or e-mail Yvonne at
yvonne.shifflette@dmh.ca.gov.This conference is supported, in part, by grant #H21MC06761 from the US Health Resources Service Administration, Maternal and Child Health Bureau’s Federal TBI Program.
William E Reynolds, DDS, MPH
Reynolds Consulting Group
24 Cheshire Way
Loudonville, NY 12211
Phone 518 527-6588
Fax 518 205-0130
WReynolds@nycap.rr.com
Kelly Buckland Appointed as NCIL’s New Executive Director
This New Year is a time of transition for our Nation and a time of transition for NCIL. In December, as President-Elect Barack Obama contemplated key appointments to the new Administration, the NCIL Governing Board completed an exhaustive search and selection process in appointing Kelly Buckland to replace John Lancaster, who is retiring to his home in upstate New York.
Kelly will bring to NCIL a career of experience in the Independent Living Movement and disability rights. He has matured in his career from his days as a social worker in Boise and an employee for Idaho’s Protection and Advocacy system. He served for years as the Executive Director of the Boise CIL, Living Independence Network Corp. He currently heads the Idaho State Independent Living Council. He has served on the Idaho Developmental Disabilities Council, the State Employment and Training Council, and the State Help America Vote Act Steering Committee.
In 1978, Kelly graduated from Boise State University with a B.A. in Social Work and in 1988 Summa Cum Laude from Drake University with a Masters in Rehabilitation Counseling. In recent years, Kelly has been honored with numerous state and national awards, including the University of Idaho President’s Medallion, the United Vision for Idaho Lifetime Achievement Award, the Hewlett-Packard Distinguished Achievement in Human Rights Award, and induction into the National Spinal Cord Injury Hall of Fame.
Additionally, Kelly is no stranger to NCIL. He has served on numerous NCIL Legislative and Advocacy Subcommittees and other standing NCIL committees, the NCIL Governing Board since 1998, as NCIL Vice-President from 2001-2005, and as NCIL President from 2005 to the present. Kelly will officially take over as NCIL’s Executive Director from John on May 15, 2009 and will continue to serve as NCIL President until his term expires at NCIL’s 2009 Annual Meeting of the Members in early June. John and Kelly will be working closely together in the first 4 ½ months of 2009 to insure a smooth and effective transition of Executive Directors.
Kelly, his wife Merle and their son Rodney will relocate to the Washington Metropolitan Area following the conclusion of Rodney’s school year. Kelly’s family have always been active supporters and contributors to Kelly’s many professional accomplishments.
The NCIL staff feels privileged to have Kelly as their new leader. His experience, insight, vision and proven leadership is what NCIL needs to direct our operations in this challenging time of National financial, political and cultural change. Please join us in welcoming NCIL’s new Executive Director, Kelly J. Buckland!
ThisAbled Press Release
“The Change We Need” Campaign Petition Drive
January 5, 2009
Join
www.thisabled.com as we drive to change employment outcomes for people disabilities. The petition is entitled Five Percent By 2013-No Excuses! It is specifically addressed to President Barrack Obama and asks for a specific target number of Five percent Federal employees with disabilities by 2013.The Federal government has called on many States and businesses to hire people with disabilities. It is time people with disabilities called on the Federal government to do the same. Currently, less than 1 percent (0.97) are people with disabilities while there are 54 million disabled in the United States. We ask that mandates of equality begin at home for the Federal government. Change your workforce to reflect the American citizens you serve.
People with disabilities are not seeking hand-outs or pity-we seek jobs! Economic empowerment through employment is far better than continued subjugation of a people through meager government benefits. We seek a top down approach to employment of people with disabilities. Lead by example so that others may follow and shatter the dismal number of less than 1 percent Federal employees with disabilities.
For more information contact:
Javier Robles, J.D.
ThisAbled@gmail.comPetition Info Below
Five Percent by 2013-No Excuses!
The Second part of 2009 efforts on behalf of people with disabilities has begun. Here is the www.thisabled.com petition to President Obama to increase the number of Federal employees with disabilities by five percent. We ask that you sign it and forward to others as well as share.
Thank you.
Sign it at:
Petition Text
We call on President of the United States Barrack Obama to employee people with disabilities at all levels of the Federal Government. Currently people with disabilities make-up less than 1 percent of the Federal workforce, this is unacceptable. We can longer afford to keep the most vulnerable in poverty by denying them jobs. America is better than that and we will prove it!
Five percent of Federal workforce to be people with disabilities by 2013, no excuses!
Together, we will send Washington a clear and unequivocal mandate to fix the unemployment problem which faces 54 million people with disabilities. We will not, we
cannot and we must not take the same lame excuses, we have for decades. Five percent-No Excuses!
Sign the petition at:
http://www.petitiononline.com/Thisable/petition.htmlLiving Well With Parkinson's
Spring Conference
Saturday, April 4, 2009
9:30 AM to 3:30 PM
The Imperia, Somerset , New Jersey
For People with Parkinson's and their families.
732-745-7520-To register
Fee-$25.00
Elizabeth Schaaf, MBA, CHES
Coordinator, Community Education Department
Coordinator, NJ American Parkinson Disease Association Information and Referral Center
Robert Wood Johnson University Hospital
Community Education Department
120 Albany Street, Suite 360
New Brunswick, NJ 08901
(732) 418-8110-Community Education Department
(732) 745-7520-NJ APDA Parkinson's I and R Center
(732) 745-3114-Fax
www.rwjuh.edu (click on Community Education events for calendar of events)
Elizabeth.schaaf@rwjuh.edu
Living Well With Parkinson’s
Spring Conference
Saturday, April 4, 2009
The Imperia, Somerset, New Jersey
A G E N D A
8:30 AM to 9:20 AM Registration & Continental Breakfast
9:25 AM to 9:30 Am Welcome & Introductions
9:30 AM to 10:30 AM Resilience and Parkinson’s
Dr. David Rintell
10:30 AM to 10:45 AM Break
10:45 AM to 11:00 AM Parkinson Unity Walk
Stacie Mishler, Special Events Director, Unity Walk
11:00 AM to 12:00 PM Plan For Your Life!
Burns and Sheryl Jedlinski
People with Parkinson’s and Advocates
12:15 PM to 1:30 PM Lunch and Presentation of Service Awards
1:45 PM to 2:05 PM Parkinson’s and the Environment
Mona Thiruchelvam, Ph.D.
Assistant Professor,
UMDNJ – Robert Wood Johnson Medical School
Department of Environmental and Occupational Medicine
1:50 PM to 2:10 PM Latest Research and PD
Fiona Gupta, MD
Hackensack University Hospital
2:10 PM to 2:45 PM Questions and Answers

