A Failure SYSTEM

I need to find a new place to live as soon as possible.  I am living with a relative but I can’t stay for a long period.

For years I have been receiving services from the Division of Development Disabilities in New Jersey (DDD). I contact DDD regarding to this problem and I asked them for help.  Unfortunately the process is taking too long.

I mailed the following letter that to my case manager from DDD back in the summer.  They were aware of the situation before the letter was written.

On September 1 20010, my parents will be moving back to the Dominican Republic (DR). Once they leave I will not have a place to stay.   Since the DR lack of resources for people with disabilities to attend school I can’t move back with my parents.   I also have student loans to pay. Financial aid doesn’t cover my entire tuition.

Since I moved to New Jersey at age fifteen, I have accomplished a lot of goals. Months after I moved, I was placed in Cerebral Palsy Center in Clifton.  The major focus of the school was to teach the students independent skills how to prepare a meal, clean a room, count money and so on.

At that time, my mother and I didn’t have any idea of what school I should go to. I was evaluated by the child study team of the district. According to them I should attend a special school.

Later on, my mother and I got involved in an advocacy group for parents with kids with disabilities. Five years later, thanks to my mother and the parents’ advocacy group we found out that I was placed in the wrong school. I transferred to a regular high school.

But my age was my biggest obstacle. I was already 20 years old and the limit age is 21.  We requested permission to the board education

In high school I had the opportunity to improve academically. Since the freshman year most of my reports cards were “As” and “Bs.” I graduated from high school on the honor roll.

After graduation I attended Passaic County College. I started taking ESL courses English As a Second Language because my English was a little poor. I had difficulties with class schedule, homework and I felt frustrated as a result, I dropped out of college.

Then I tried to find a job. The only job that I found was working in a workshop for people with disabilities but I didn’t feel happy to be working there. I wanted to do other types of work such as computer data, receptionist or file clerk. I was told that I didn’t qualify for that type of job. A year later I stopped working at the workshop.

I went back to college to complete the courses that I needed it. I took one or two courses per semester. One of my English professors became my mentor. Thanks to my family and his support I was able to success in college. While I was there my mentor encouraged to write personal essays, poems, articles and doing translations from Spanish to English. I didn’t know that my writing skills is strong. I also completed the ESL Program and took college level courses.

On May 2009, I graduated with an associate in liberal arts. On September first I transfered to William Paterson University. Now I am communication major. Also last year, I worked as intern for the state of New Jersey.

Patience and Persistence

I have waited for this moment for a long time. May 26, 2010 – 9:15 AM. Today I harvested my first turkey in 11 years. I had been an avid hunter prior to my disability. I believed I would never be able to hunt again, especially by myself. Today’s success was the result of the labors of many people: my wife, who walked me out and help me set up, my nurse Rhonda, who came at 6 AM the mornings in May so I would have more time to hunt, my neighbor Mike, who allows me to hunt his land, my friend John, who gave me his time to set up blinds made out of snow fence and camouflage material, and so it goes. My wife likes to say “It takes a village”.

The blind

I am also proud of myself. Over the 11 years, I got discouraged; turkeys often were close enough to harvest but something always went wrong.  In the beginning it was my inability to camouflage my wheelchair well enough, then my finger couldn’t pull the trigger, or I had a muscle spasm which alerted the turkeys to my presence and were instantly gone. But I persisted and attempted to correct the challenges as they presented themselves. But at the end of each spring I had the same results — NOTHING. Often it was a process of trial and error, but gradually my efforts began to improve my chances. I created a trigger adapter which allows me to fire the shotgun using my mouth. Not only does this solve the problem of trying to find the trigger, but it also allows me to use both hands to steady the gun. At many points along the way it would’ve been easy to give up and quit. I know from experience it’s a lot easier to give advice to others than it is to take it myself. So get discouraged, get frustrated, but don’t give up.

The trigger adapter I made

One of the things I like the most about hunting is that it is totally irrelevant to the game that I am an individual with a disability. To the turkeys I hunt, I am just another predator and that’s all I ask for. Today was definitely a day worth waiting for.

The turkey on my lap. Notice the turkey call I adapted to sit on my thigh so I could use it one handed

Raised Garden Boxes

Plans For A Raised Garden Box

Would you like to raise some flowers and/or grow some vegetables for your own consumption? Raised bed garden boxes will let you do that and it is great exercise. Each spring the soil must be worked up and planted. During the growing season the vegetables must be weeded and

thinned. If the weather is not cooperating the plants must be watered. The wilted flower heads must be picked off the plants (called deadheading) which is great exercise for fingers. A box does not take up much room if space is an issue. Prior to placing a box, the area under it must be prepared. This is not necessary if it will be placed on cement or any other solid surface. If placed on the ground you must assure good drainage.

The height of the box opening should be a few inches taller than the armrests of the wheelchair. The width of the growing area should be several inches less than twice the gardener’s arm length which will allow the covering of the entire planting area. Built from pressure treated lumber, the box is open on two sides so one can drive a wheelchair underneath it and work straight on. 

The first year my boxes presented some unique problems because of the construction.  The 2” by 8” which made up the planting area did not allow for the soil to be deep enough for vegetables so most of the vegetables planted did not grow very well.  The following year, as you can see from the picture, we added about 3 inches to the height of the planting area.  This allowed adding another 250 pounds of soil to the bed.  Also, in an effort to cut down on moisture evaporation we added Hydro-Sorb to the soil. Hydro-Sorb retains water and releases it a little at a time.  These two changes made the boxes much more successful. We did not find it necessary to increase the depth of the flower boxes.               

I have 6 boxes, four I plant with vegetables and the other two with annual flowers. I enjoy working these boxes very much. I use adaptive garden tools which can be purchased online. The vegetable boxes can grow salt potatoes, broccoli, onions, baby carrots, beets and garlic. Gardening is good for many different reasons. Check out the video   Raised Bed Gardening

Raised Fower Box In Bloom

Working A Raised Garden Box

Button Board

Surf The Web Using Your Mouse

This morning when I open my e-mail I found the most interesting letter.  Dominic Valentino  wrote me about a website he constructed called Button Board buttonboard.com , which allows an individual to surf the web using just the mouse. He built the website for his own personal use but was wondering if it would be helpful to other people who have limited range of motion or other problems. I tried the website and it works great. It amazes me the technological skills that some people have.

There are two other commercially available products which may make your computer more user friendly. The first is the UBS Haspel 4 Port Web Hub which connects to a UBS port in the back of your computer. A 3 foot long cord on a reel allows you to place the plug in device anywhere you want it. There are four UBS ports located around a  4” circular hub. If your dexterity is limited when you go to connect something like a scan disk at least one port is usually facing the right way. The cost at Radio Shack is less than $10. The second, also available at Radio Shack, is a Logitech Trackman Marble (Computer Mouse) The mouse ball is on the top as opposed to the bottom. The entire device stays in one place and you just manipulate the ball. It can be setup for right or left-handed people. You can choose what function you want the easily accessible button to perform. Also it enables you to control the speed of the cursor. I encourage you to try the Button Board website and forward it on to anybody you believe would find it useful. Please if you have created something like Dominic which would be useful to others contact us.

Two User Friendly Products