All We Are

Living It Up

A while ago I saw Milery Cyrus (aka Hanna Montana) being interviewed on Good Morning America about a photo shoot she had done which was appearing in some fashion magazine. To her credit she talked about the two hours of makeup preparation prior to the shoot and the airbrushing that was done to the photos afterwards before they were ready for the magazine. She concluded by saying this process would make any individual look beautiful and sexy. This was quite a mature, candid and astute observation for such a young woman. During my 34 years of teaching I was constantly trying to help students see themselves in a more positive light. When we are subjected to negative interactions in our daily lives we tend to wonder what is the matter with us. When in reality, we should be thinking what’s wrong with the other person. We are bombarded daily with messages of what the ideal image and lifestyle for us should be. Few, if any of us, can live up to these unrealistic expectations. The majority of people seem to be less than satisfied with their physical features. This is very evident when we look at the rise in cosmetic surgery over the past few years. As Oden Black pointed out in his last blog Love You. Love Me! “We look in the mirror and see deficiencies, which are compounded by everyday negative comments and messages we receive from those around us.” Our society worships youth and perfection. How many times have you turned on the television or opened a magazine to see a celebrity who has had so much plastic surgery they are hardly recognizable. There is an additional obsession for many people to look young and in shape, and many individuals take the shortest and quickest methods available to achieve this goal such as liposuction or dangerous fad diets. If I paraphrase Buddhism’s Four Noble Truths we can begin to see a way to relieve some of this way of thinking.

Suffering is due to desire                                                                                                         

Trying to eliminating desire                                                                                                      

Will lead to a life with less suffering

Several years ago I was seeing a psychiatrist who asked me if I could identify any positive things that had come as a result of my condition. After several minutes of thought, I said I had met some wonderful people, but could think of no others. He then suggested to me that I no longer had to worry about vanity. What a ridiculous statement! If anything I’m more vain. In fairness to him, like most of the doctors I deal with, he had little experience with someone with my disability. The point I’m getting at here is that most people in society have hang ups about the way they look and the way others perceive them. So, as individuals with disabilities we are not as different from others as we may think we are. We would all be much more content and enjoy our lives much more if we accepted our physical selves the way we are and allow nature and the aging process to follow their normal courses.

As Matt Nathanson has written in his song “All We Are”

I kept falling over
I kept looking backward
I went broke believing
That the simple should be hard

‘Cause all we are we are
All we are we are
And every day is a start of something beautiful, something real

All we are we are
All we are we are
And every day is a start of something beautiful, beautiful

Love You. Love Me!

By Odeon Black

Sexuality abounds in the media, from scantily clad Calvin Klein models who seemed malnourish, to hundreds of bikini wearing women running towards a man spraying cologne on himself.   They are all beautiful, sexual, and sexy, they ooze pheromones and more to the point they sell products.  These ads are made so that you don’t want to look away, made to keep you enticed until your sold.  But what are you buying? A product or an image of what is perfect?  The truth is many times we don’t know what we are being sold.  But often it makes us feel like we bought the underline message, they are pretty and we are not.

We look in the mirror and see deficiencies, which are compounded by everyday negative comments and messages we receive from those around us.  Bombarded by stares of public and private disapproval we forget the day we stopped feeling beautiful.  The day a simple dress made her feel like a princess, or when a pair of shoes put him “on top of the world”.  To many of us with disabilities those memories are a distant fog.  It is sexuality, denied! It is beauty unreachable! Most of all, it is self-inflicted.  Like cutting into your skin every time you get depressed, until you no longer feel the knife, but the scars are clearly visible.

I have met them.  I hear their self-disgust and see every cut in their eyes.  Society, What has thou done?   They talk to me of feeling un-loved, hating their bodies, their looks and the hand they were dealt.  The screams of pain have been real and imagined, but the suffering is constant.  The new dress has lost it’s magic, and those shoes no longer shine.

Why?  Because we grew-up, watched too much television, and actually became the person most displeased by our looks.  We devalued our contributions and our sexuality and forgot what made us beautiful.   Someone told us that our dress was not pretty and our shoes were outdated.  They crammed their negative views into our special pleasures, and we let them.  To this day we cry because we miss them, because we let them.

My theme of sexuality and disability is usually spicy and upbeat and so we will end on an upbeat note.  First, it is time to take back what is yours, your beauty, sexiness, positivity and your ability to look in the mirror.  Time to love the imperfections, which have, become knives to your soul. It is truly time to tell the negative influences, including, media, mind and “friends”, to keep their comments to themselves.  So, make a date with yourself.  Do your favorite things, and fall in love all over again with the little girl who lit up a room with her smile.  Reach deep into the well of darkness and pullout your favorite shoes and wear them.  If by chance you run into someone who tells you how ugly your shoes or dress may be, tell him or her, Fuck You!

Getting It Right

About five months ago I was asked to blog on a website in Australia. So, I downloaded a clock onto my home page which would tell me the time there and another gadget to let me see what the daily weather was like. At times I publish blogs I’ve used on my own site with minor adjustments. I thought it would be very interesting to write on the blog in another country but I realized there might be some different perspectives once in a while.  There have not been any until my last blog entitled Patience and Persistence which reflected my harvesting a wild turkey the first since my disabling accident 11 years ago. Imagine my surprise when my latest post was introduced by the following two paragraphs written by the blog editor:

 Hi everyone, welcoming you to another blog from Rich Fabend. Just a side note we in no way encourage the use of guns or promote hunting or anything of the sort. In Australia there are tight rules and restrictions and definite no-nos about the use of guns. I in fact love turkeys as I think they are very fascinating creatures.  However I think that there is a great lesson and moral behind the words that Rich  has presented in his blog posts here, and that is about patience and adapting to change.
 … He lives in America and it is currently Hunting season there, thus causing the theme of his posts. But from his posts we can see that disability is a daily thing, however if we learn to live with it in our own way, it moves away from something hat runs our life to something that is part of our being.

When I first started writing about hunting I fully expected I would get responses from individuals who were uncomfortable with those actions.  I also thought any issues would originate in the US and I believed these blogs would be well accepted in Australia. I have absolutely no problem with the comments that were written. Personally, I believe the United States should have stricter gun laws. However, the more I thought about it the more I realized my own misperception of Australia had been formed from watching  movies like Crocodile Dundee, Australia, Quigley Down Under and the television exploits of Steve Irwin the Crocodile Hunter. Obviously, my concepts were inaccurate. I guess that’s the equivalent of people believing that New York State is one huge megalopolis resembling New York City.

While our views of other countries and cultures may be very limited, one thing is perfectly clear to me and that is that, as individuals with disabilities, we are a subculture of our own regardless of where we live in this world. We are brothers and sisters united by our struggle to deal with the profound challenges that confront us every day. I believe, in many ways, we have more in common with each other than we have with many of our able-bodied countrymen. When we communicate there is an unspoken acknowledgment of what our daily lives are like. We immediately understand what each of us is dealing with and feel no great need to explain it.

I orginally started my website www.handihelp.net so we could communicate with each other and more particularly share ideas, shortcuts and equipment that we have developed to reduce the frustrations we face daily. Why should an individual joining our subculture not be able to have ready access to the things that have already been developed which would improve their quality of life? I am speaking here primarily of equipment but I also feel strongly that we should share the mental processes, attitudes and beliefs that have allowed us to adjust to situations that life has chosen to place us in.

So first I should apologize to the people of Australia for the foolish beliefs I had about their country. More importantly, I think we of the world’s disabled community should make greater efforts to share our thoughts and information which will enable us to live more stress-free lives.

Patience and Persistence

I have waited for this moment for a long time. May 26, 2010 – 9:15 AM. Today I harvested my first turkey in 11 years. I had been an avid hunter prior to my disability. I believed I would never be able to hunt again, especially by myself. Today’s success was the result of the labors of many people: my wife, who walked me out and help me set up, my nurse Rhonda, who came at 6 AM the mornings in May so I would have more time to hunt, my neighbor Mike, who allows me to hunt his land, my friend John, who gave me his time to set up blinds made out of snow fence and camouflage material, and so it goes. My wife likes to say “It takes a village”.

The blind

I am also proud of myself. Over the 11 years, I got discouraged; turkeys often were close enough to harvest but something always went wrong.  In the beginning it was my inability to camouflage my wheelchair well enough, then my finger couldn’t pull the trigger, or I had a muscle spasm which alerted the turkeys to my presence and were instantly gone. But I persisted and attempted to correct the challenges as they presented themselves. But at the end of each spring I had the same results — NOTHING. Often it was a process of trial and error, but gradually my efforts began to improve my chances. I created a trigger adapter which allows me to fire the shotgun using my mouth. Not only does this solve the problem of trying to find the trigger, but it also allows me to use both hands to steady the gun. At many points along the way it would’ve been easy to give up and quit. I know from experience it’s a lot easier to give advice to others than it is to take it myself. So get discouraged, get frustrated, but don’t give up.

The trigger adapter I made

One of the things I like the most about hunting is that it is totally irrelevant to the game that I am an individual with a disability. To the turkeys I hunt, I am just another predator and that’s all I ask for. Today was definitely a day worth waiting for.

The turkey on my lap. Notice the turkey call I adapted to sit on my thigh so I could use it one handed