The Power of Knowing

Finishing the marathon in 1983

What attributes lie within you? Have you ever thought about that? In 1983, a few days before my fortieth birthday, I ran a marathon. For those of you who may not know, that is a race of 26.2 miles. I decided to do this because I wanted to show my 13 year old son you can do anything you set your mind to do. It just about did me in; I could not talk when I finished, but I did it. However, I never ran another marathon.

A few years after my injury, I started talking in local schools about inner strength, commitment and positive attitude.  After one assembly a young student named Tyler Kellogg came up to me and said I had inspired him, so he had decided he was going to run an Ironman Race. A traditional Ironman race consists of a 2.4 mile swim, followed by a 112 mile bike ride, and then a 26.2 mile run.  It was a major undertaking for a 17 year old kid. I thought to myself “Good Luck.”  We kept in touch while he and his Dad, who had decided to do the Ironman too, were training. Neither one of them had done anything like this before. Not only did they do it, but Tyler was the youngest finisher out of the 2208 who finished the race.  Roles had now been switched and Tyler had become my inspiration. Now when I struggle to do something, I try to remind myself of what Tyler did just because he had the desire.

I have thought a lot about these two events for a long time. I have come to the conclusion that the benefit of accomplishing feats like these lies not in the accomplishment itself but rather in the knowledge that you can, when you want or need to, marshal all the physical and mental strength that lies within you in an effort to attain a goal.

We have all run our own “Ironman Race.”  The demands placed on us by our disabilities are far more difficult than the stresses and strains experienced during the most punishing athletic event. Even the most grueling challenge is limited in time (Tyler finished in 14 hours, 36 minutes, 25 seconds) and there is always the option of dropping out if need be. You cannot say that about a disability. So understand what you have already done and are doing everyday. Know the strengths that lie within you. And if you remember this you can draw upon those strengths when needed. That is the power of knowing.

Tyler helping me start kayaking again

Tyler & me at his high school graduation party

Button Board

Surf The Web Using Your Mouse

This morning when I open my e-mail I found the most interesting letter.  Dominic Valentino  wrote me about a website he constructed called Button Board buttonboard.com , which allows an individual to surf the web using just the mouse. He built the website for his own personal use but was wondering if it would be helpful to other people who have limited range of motion or other problems. I tried the website and it works great. It amazes me the technological skills that some people have.

There are two other commercially available products which may make your computer more user friendly. The first is the UBS Haspel 4 Port Web Hub which connects to a UBS port in the back of your computer. A 3 foot long cord on a reel allows you to place the plug in device anywhere you want it. There are four UBS ports located around a  4” circular hub. If your dexterity is limited when you go to connect something like a scan disk at least one port is usually facing the right way. The cost at Radio Shack is less than $10. The second, also available at Radio Shack, is a Logitech Trackman Marble (Computer Mouse) The mouse ball is on the top as opposed to the bottom. The entire device stays in one place and you just manipulate the ball. It can be setup for right or left-handed people. You can choose what function you want the easily accessible button to perform. Also it enables you to control the speed of the cursor. I encourage you to try the Button Board website and forward it on to anybody you believe would find it useful. Please if you have created something like Dominic which would be useful to others contact us.

Two User Friendly Products

                                              

ROLLING PROUD by Andrew Levinson

Who’s David Cameron and Why Should We Care?

In the past, I posted about Australia’s efforts to reform its long-term care system for people with disabilities via a proposal called the NDIS. It got me to thinking: What about Australia’s former colonial master in the United Kingdom?

It turns out that Britain has been making headlines in the area of disability rights as well. First of all, David Cameron, and the Conservative Party that he leads, is ahead of incumbent Prime Minister Gordon Brown and his Labour Party going into a parliamentary election due to happen by June.

All right. So…who cares?

Well, Cameron recently lost his six-year old son to multiple disabilities, in the forms of epilepsy and cerebral palsy. (Remember Bruce Bonyhady of Australia and his sons with cerebral palsy)? Does this mean that disability rights advocates could have a strong ally in a new British prime minister next year?

Cameron would not only be inheriting a country with major economic problems that are similar to the U.S., but will also be taking the helm at a time when his political opponents in the Labour Party , in another British parallel to Australia, have been discussing long-term care reform in Britain. Britain’s universal health care system, the NHS (National Health Service), does not include provisions for home care for the elderly and people with disabilities. Would Cameron advocate for such reforms as well, with present budgetary constraints in Britain? This remains to be seen, although Cameron has already gone against members of his own party to oppose cuts to the NHS in memory of his son.

We also shouldn’t forget that Britain will be hosting the Summer Paralympics in 2012. What might a Prime Minister Cameron do to prepare and celebrate this event in the run-up to it? This also remains to be seen.  Stay tuned…

Start By Educating the Educators

In my work, I am often invited to high schools to speak to students on career day. I always invite an associate who is visually impaired because, too often well intentioned professionals (like me) consider themselves authorities but, I believe if you want to know about how somebody thinks, feels and lives, you need to ask them.

We always encourage the students to ask anything – we want to dispel stereotypes and to also answer questions that people usually consider politically incorrect.

I call what we do – sensitivity and awareness presentations.

The kids are always open and eager to understand. The teachers and the school administrators? Not so much.

Recently my colleague and I were invited to a high school in Union County. We were introduced to the hundreds of students in the assembly by the principal, who’d introduced herself to us as Dr. (name withheld to protect the ignorant).

Although we’d spoken with her and provided our bios, she introduced us as follows:

“Ladies and gentlemen, we will now hear from Ms. Gaston who is going to tell you about her career helping the blind. I think it is wonderful that she has also brought one of the blind that she teaches to live in society. You know we all must be considerate of the handicapped because they are God’s special people. The gentleman here today was trained to live like normal people and he’ll tell you how he learned to take care of himself. It’s important to accept handicaps because it isn’t their fault that they have an illness. They can’t help being different. Having so many challenges is not easy, not at all. So, I want you to promise that you will pay attention and make our guests feel welcome at our school.”

I looked at my colleague – my friend and the expression on his face spoke volumes. First, I told her I am a Public Information Officer not a teacher. Second – After speaking to him, discussing his credentials, and reading his bio! He and I both could not believe that she came out of her face like that! Nothing about this guy presents as anywhere near pitiful.

He is an educated world class athlete, husband, and father. The man is the founder and CEO of a successful business. He sells computers not pencils out of a tin cup on the corner of Broad & Market!

To lighten the moment, I leaned over and whispered, “Is it me, or do you hear violins?”

As, I addressed the students, I noticed a familiar face. A young man who is part of a group of visually impaired teens who are mentored by – guess who? My colleague.

The poor kid was chewing his nails, tapping his foot and fidgeting nervously in his seat. He looked terrified. I felt him. I knew immediately, he was afraid we were going to “out” him. He was doing something a lot of people who are legally blind do. We call it “passing” – pretending that their visual impairment does not exist.

But think about it – if the Principal, the leader of both the faculty and students has that perception of people with disabilities – do you blame him?

Peace,
Ujazi