ROLLING PROUD by Andrew Levinson

Who’s David Cameron and Why Should We Care?

In the past, I posted about Australia’s efforts to reform its long-term care system for people with disabilities via a proposal called the NDIS. It got me to thinking: What about Australia’s former colonial master in the United Kingdom?

It turns out that Britain has been making headlines in the area of disability rights as well. First of all, David Cameron, and the Conservative Party that he leads, is ahead of incumbent Prime Minister Gordon Brown and his Labour Party going into a parliamentary election due to happen by June.

All right. So…who cares?

Well, Cameron recently lost his six-year old son to multiple disabilities, in the forms of epilepsy and cerebral palsy. (Remember Bruce Bonyhady of Australia and his sons with cerebral palsy)? Does this mean that disability rights advocates could have a strong ally in a new British prime minister next year?

Cameron would not only be inheriting a country with major economic problems that are similar to the U.S., but will also be taking the helm at a time when his political opponents in the Labour Party , in another British parallel to Australia, have been discussing long-term care reform in Britain. Britain’s universal health care system, the NHS (National Health Service), does not include provisions for home care for the elderly and people with disabilities. Would Cameron advocate for such reforms as well, with present budgetary constraints in Britain? This remains to be seen, although Cameron has already gone against members of his own party to oppose cuts to the NHS in memory of his son.

We also shouldn’t forget that Britain will be hosting the Summer Paralympics in 2012. What might a Prime Minister Cameron do to prepare and celebrate this event in the run-up to it? This also remains to be seen.  Stay tuned…

Do Politicians Take the Disabled Vote Seriously?

Part I
By Javier Robles

Am I invisible?  Is the group of people that I belong too a mere mirage?  Are we as people with disabilities only good for photo ops and feel-good stories?  How can it be that we do not seem to count when counting votes.  We as a group become non-existent.  So much so that when Barack Obama won the Presidency and mentioned people with disabilities in his speech; it caused a stir with people with disabilities. Amazing! Yet, not surprising.  Why?

Here is what I think.  There are two simultaneous issues going on between politicians and people with disabilities.  The first issue, concerns a historical struggle for survival by individuals who to this day are second class citizens.  The second issue,  surrounds political strategist and their clients (politicians) who are unable or unwilling to realize the potential of this group.  Let me explain.

Historically, the “struggle” has been about housing, institutionalization, discrimination, access and more recently jobs.  While this list is not exhaustive it offers a glimpse of some major struggles. The point is that we as a group are in a constant battle with society to maintain our independence. We push for laws to de-institutionalize (Olmstead) and laws for greater Access (Americans with Disabilities Act) and we fight for every dollar.  We are in an eternal state of chaos.  Fighting so hard to be free that we forgot all about the politicians we put in office.  Not that politicians have done nothing.  There has been progress in the last 100 years for people with disabilities.  However, as a group we progressed with  small victories, and many times specific to our particular disability. Like the Randolph-Sheppard Act of 1936 which was passed to allow blind vendors access to Federal buildings.  There have been numerous registry laws state to state on Autism, spinal cord injuries, traumatic brain injuries, etc.  But at the end of the day we continue to be ignored on a global scale.  Our power is reduced to statistics which point to one thing; people with disabilities do not vote.  Therefore, their overall needs are unimportant during election time.  Or are they?

Part II Next Week

ROLLING PROUD by Andrew Levinson

When Is the Economic Boom for People with Disabilities Going to Arrive?

14.1%? Come on, you’ve got to be joking.

Yes, the Bureau of Labor Statistics announced not too long ago that in “November 2009, the unemployment rate of persons with a disability was 14.1 percent, compared with 9.2 percent for persons with no disability, not seasonally adjusted.” Even during the worst economic crisis since the Great Depression, the unemployment rate for people without disabilities is still only in the single digits, while people with disabilities suffer from double-digit unemployment. Yeah, people can talk about the economic expansion of the 90s and say that the good days are long behind us. However, just ask the contributors to a project that ended in 2004 called The Center for an Accessible Society. It doesn’t seem that there ever were “good days” for people with disabilities.

2010 will bring the ADA’s 20^th birthday, with the ADA, of course, being the principal example of federal disability rights legislation. It’s time to celebrate that birthday with true health care reform. It’s time to end a dependence, for a lot of us, on Social Security. (If you have a “preexisting condition,” you are left with Medicaid, by way of SSI, as your only option. Also, Medicaid is far from a universal health care program with its restrictive eligibility standards). Here’s to Josie Byzek of New Mobility for talking about this dependence and the fear of leaving one’s job over health care coverage. I think it’s only fair that we allow entrepreneurs with disabilities to buy affordable health care coverage and allow workers with disabilities to find the job that provides them with the highest standard of living and not the best health care insurance.