ROLLING PROUD by Andrew Levinson

Who’s David Cameron and Why Should We Care?

In the past, I posted about Australia’s efforts to reform its long-term care system for people with disabilities via a proposal called the NDIS. It got me to thinking: What about Australia’s former colonial master in the United Kingdom?

It turns out that Britain has been making headlines in the area of disability rights as well. First of all, David Cameron, and the Conservative Party that he leads, is ahead of incumbent Prime Minister Gordon Brown and his Labour Party going into a parliamentary election due to happen by June.

All right. So…who cares?

Well, Cameron recently lost his six-year old son to multiple disabilities, in the forms of epilepsy and cerebral palsy. (Remember Bruce Bonyhady of Australia and his sons with cerebral palsy)? Does this mean that disability rights advocates could have a strong ally in a new British prime minister next year?

Cameron would not only be inheriting a country with major economic problems that are similar to the U.S., but will also be taking the helm at a time when his political opponents in the Labour Party , in another British parallel to Australia, have been discussing long-term care reform in Britain. Britain’s universal health care system, the NHS (National Health Service), does not include provisions for home care for the elderly and people with disabilities. Would Cameron advocate for such reforms as well, with present budgetary constraints in Britain? This remains to be seen, although Cameron has already gone against members of his own party to oppose cuts to the NHS in memory of his son.

We also shouldn’t forget that Britain will be hosting the Summer Paralympics in 2012. What might a Prime Minister Cameron do to prepare and celebrate this event in the run-up to it? This also remains to be seen.  Stay tuned…

Do Politicians Take the Disabled Vote Seriously?

Part I
By Javier Robles

Am I invisible?  Is the group of people that I belong too a mere mirage?  Are we as people with disabilities only good for photo ops and feel-good stories?  How can it be that we do not seem to count when counting votes.  We as a group become non-existent.  So much so that when Barack Obama won the Presidency and mentioned people with disabilities in his speech; it caused a stir with people with disabilities. Amazing! Yet, not surprising.  Why?

Here is what I think.  There are two simultaneous issues going on between politicians and people with disabilities.  The first issue, concerns a historical struggle for survival by individuals who to this day are second class citizens.  The second issue,  surrounds political strategist and their clients (politicians) who are unable or unwilling to realize the potential of this group.  Let me explain.

Historically, the “struggle” has been about housing, institutionalization, discrimination, access and more recently jobs.  While this list is not exhaustive it offers a glimpse of some major struggles. The point is that we as a group are in a constant battle with society to maintain our independence. We push for laws to de-institutionalize (Olmstead) and laws for greater Access (Americans with Disabilities Act) and we fight for every dollar.  We are in an eternal state of chaos.  Fighting so hard to be free that we forgot all about the politicians we put in office.  Not that politicians have done nothing.  There has been progress in the last 100 years for people with disabilities.  However, as a group we progressed with  small victories, and many times specific to our particular disability. Like the Randolph-Sheppard Act of 1936 which was passed to allow blind vendors access to Federal buildings.  There have been numerous registry laws state to state on Autism, spinal cord injuries, traumatic brain injuries, etc.  But at the end of the day we continue to be ignored on a global scale.  Our power is reduced to statistics which point to one thing; people with disabilities do not vote.  Therefore, their overall needs are unimportant during election time.  Or are they?

Part II Next Week

Livin Large and Lovin It

It’s January 3rd 2K10 and after all the prep, pomp and circumstance, the holidays are a done deal. Time to take down the decorations, put away the leftover wrapping paper and throw out the leftovers (I am placing a personal moratorium on consuming turkey at least the next 4 months).
I usually don’t make resolutions because I hate breaking promises, especially to myself.
Undoubtedly you’ve probably already heard somebody declare their goal is to lose weight. If you haven’t – I certainly have, at least 10 times from 10 different people already.
I was minding my business today, washing my hands in the restroom and these two chicks were discussing their holidays and inevitably, the question was asked, “Did you make any resolutions?” Both of the ladies did not appear to have any discernible excess flesh but here is how their conversation went:
“Oh girl I have to lose some of this weight. I have just let myself go.”
“I know what you mean. I am getting as big as a house. All this weight is just not healthy.”
I looked up just in time to catch the one with her back to me jerk her head in my direction. When the other one saw me looking at them in the mirror, she grabbed her friend’s arm and dragged her towards the door. When they got to the other side they both began laughing.
I laughed too.
For anyone reading this who has never met me I am a big woman. Nothing about me is thin. The words “small” – “average” – “normal” – “regular” are generally not used when someone is describing me and not just because of the size of my body.
So, they thought they were laughing at me and I laughed along with them but for a different reason.
I don’t want to be small if it means that trying to humiliate someone would be something I would consider amusing.
I don’t want to be average if it means that how I look will become more important then how I treat people.
I don’t want to be normal if it means that my spirit will no longer be able to connect with anyone who is not like me.
And I definitely don’t want to be regular if it means I will forget that kindness, respect, understanding and love are what real beauty is about.

So, for 2010, I’m putting a red circle with a line through it on anybody or anything that tries to interfere with my believing that I have the right to cherish this wonderful life I have been given to live.

ROLLING PROUD by Andrew Levinson

“Down Under” Care

Australia as an example for health care reform in the United States?

Yes, as surprising as it may seem, Australia is taking major steps to reform its long-term care and support system for people with disabilities. A federal policy wonk by the name of Bruce Bonyhady, who has two sons with Cerebral Palsy, has been pushing for a compulsory National Disability Insurance Scheme (NDIS) that would be publicly-financed and would cover people with all kinds of disabilities.

The major problem in Australia is that the “safety-net” for people with disabilities is incomplete. An Australian with a disability does receive financial support in the case of a disability that results from a workplace or motor vehicle accident. However, for other people with disabilities, there is no such security. There is the threat of being institutionalized, if one’s family is unable, both financially and emotionally, to care for the person with a disability.

The NDIS would help to cover the expenses of various areas of daily life, including healthcare, education, and employment. This proposal is being studied by the Australian federal government’s Productivity Commission and recommendations are due in July 2011.

This begs a question: Why are Americans with disabilities stuck with the prospect of the CLASS Act program? The CLASS Act program, as mentioned in a blog by Paula Span of The New York Times is voluntary long-term care legislation that is primarily a middle-class benefit and is meant for disability that may occur down the line. To explain it further, the CLASS Act only provides benefits for those working for five straight years and for those who receive a large enough salary to afford to pay monthly premiums. Lastly, you need to understand that the CLASS Act will only cover a maximum of $100 per day, depending upon the severity of one’s disability.

Yes, that’s right. The CLASS Act would still leave people with disabilities with some expenditures toward long-term care and definitely wouldn’t be enough to cover 24-hour care either.

This would work well for employed, middle-class people, when they retire, for instance, and need some help with daily tasks. However, the CLASS Act does not eliminate the dependence on Medicaid faced by lower-income, younger people who have severe disabilities and, therefore, need immediate care, which they cannot afford on their own. Let’s remember that this dependence on Medicaid forces people with disabilities to impoverish themselves.

It’s time to be honest: As good as it may sound, we’re not all moving to Australia. Also, no one can predict when the next time to make significant changes to our health care system will be, with all of the controversy and money involved in doing so. When health care reform passes this time around, let’s be sure that we, as people with disabilities, can truly celebrate it. We need true long-term care coverage in the United States now.