Growing-Up Dominican and Disabled

By Juana M. Ortiz

The first impression is the one that counts. Judging others is common because having a good physical appearance is essential in order to fit into society.  I was born and raised in the Dominican Republic (DR).  In 1972 a couple of months after I was born, I was diagnosed with Cerebral Palsy.  According to the doctor, the left side of my brain was affected due to a delay during labor.

As a little girl, I didn’t have the opportunity to attend to a traditional school. Special education or services to teach a child with CP didn’t exist in the DR.  Although, I still had the desire to learn, to have friends and to live the same way that the kids of my family and neighborhood lived.

I grew up hearing people asking why I was walking that particular way, or if somebody put a curse on me. On a few occasions, I was outside and people stared at me like I was from another planet. What was even worse was that some kids made fun of me because of the way I walked or the way that I talked.   I have had to learn to live with these types of situations throughout my youth. All these experiences were the hardest part of living with CP in a society where children with physical limitations were not well accepted.

Some people in the DR follow the Santeria or Voodoo beliefs. These two practical beliefs are not recognized officially as the Roman Catholic religion, which is the major religion faith in the country.  In other words, people though that I was borne with CP because a person who follow the Santeria or Voodoo put a curse on me.

At that time, accepting myself, as a person with Cerebral Palsy, was the biggest challenge that I had to face, even though I had a lot of support from my family. There were times when I felt bad for myself, and I went to bed at night and cried because I couldn’t do the same things that the kids my age were doing.

The next day I’d wake up like nothing had happened to me the night before. I‘d wake up being the child that I was before I went to bed, without telling anybody how bad I felt. I hated when somebody outside my family showed any expression of sympathy or sorrow and I didn’t want my family to start showing the same expression either.

It is time to stop stereotyping, and start creating awareness about how people with physical limitation should be treated. Home is the first place to initiates the awareness about this issue. Frequently, when a child is born with some type of physical limitation such as cerebral palsy or any other type of medical condition, the family tends to over protect him or her. Fortunately, I am an exception.

I am the oldest of three children and only girl, I was raised the same way as my brothers with no special treatment if I did something wrong I was punished. My parents’ friends used to tell them that I should not be punished but my parents didn’t pay any attention to their friends’ suggestions.  We were treated equally, always.  This has helped me become the person I am, regardless of what other people thought or said about me.